Assembly Republican Press Release -
The Assembly Women and Children Committee today passed Assemblyman Jay Webber’s Down Syndrome Information bill, which is modeled after legislation supported by the National Down Syndrome Society (NDSS). It requires health care workers provide parents accurate, professionally-recognized materials with referrals to local support organizations when delivering a positive prenatal or postnatal test result for Down syndrome.
“This bill allows more parents to plan and educate themselves on the essentials of raising a special needs child,” said Assemblyman Webber, R-Morris, Essex and Passaic. “People with Down syndrome lead lives worth living and are loved by their families, friends, and communities. This bill helps welcome them into the world from the very beginning.”
The legislation (A-3233) directs the New Jersey Department of Health to create an information sheet that includes all of the following:
•A description of Down syndrome, including its effects on development, education and physical outcomes, and life expectancy;
•Options for treatment and therapy;
•Contact information for local, state, and national organizations that provide Down syndrome educational and support services and programs.
“By providing family support and the latest medical information, parents will have a more accurate idea of what to expect, and how to get ready to bring the newest member of their family home,” said Assemblyman Webber.
Other states that have recently passed similar legislation include: Delaware, Illinois, Kentucky, Louisiana, Maryland, Massachusetts, Ohio, and Pennsylvania.